Directory of Tourette Syndrome Patient Associations

An overview of the most important services and contact details of TS Patient Associations around the world; get to know what the organisation in your respective country has to offer. Professionals can easily share this information with their patients and open the way to support in an accessible manner.

If you are a Patient Association representative and wish to update any of the details below, or to be included in this directory, please submit your content via this online form, or contact us directly here.
We appreciate your help in making this online directory a useful tool for patients, their families and professionals all around the world!

A very special thank you to Dr Seonaid Anderson and Dr Annet Heijerman who have worked tirelessly on compiling information from all around the world and have meticulously drafted this valuable database.
Argentina

Argentina

Asociación Argentina para el Síndrome de Tourette

Area covered:
Whole country and Latin American countries
Support services:

Phone helpline, e-mail service, YouTube channel, private social media groups, live chat, brochures/flyers/books, school visits, activities/weekends/meet-ups

Participation in research or mental health:

Funding for research, carrying out and publishing own research, organising lectures/symposia/events for professionals, involvement in creating guidelines for health care professionals

Person to contact:
Australia

Australia

Tourette Syndrome Association of Australia

Area covered:
Whole country
Support services:

Website, phone helpline, email service, online forums, newsletter/magazine, school visits, support group meetings, providing training for professionals, sales of products (t-shirts, pens, badges), YouTube channel, private social media groups (Whatsapp/Facebook groups), brochures/flyers/books, an overview of TS specialists, a national camp program, school in-service and peer to peer education program

Participation in research or mental health:

Carry out our own research, co-operate with researchers e.g. find or advertise for participants, organise lectures/symposia/events for professionals

Person to contact:
Austria

Austria

Österreichische Tourette Gesellschaft

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, online forums, private social media groups, brochures/flyers/books, school visits, visits to employers,support group meetings, activities/weekends/meet-up's, training for professionals, overview of TS specialists

Participation in research or mental health:

Cooperation in research, organising lectures/symposia/events for professionals, offering support as part of the treatment

Person to contact:
Belgium

Belgium

Iktic Tourettevereniging België VZW

Area covered:
Whole country
Support services:

Website, e-mail service, online forums, private social media groups, newsletter/magazine, brochures/flyers/books, school visits, visits to employers, support group meetings, activities/weekends/meet-ups, overview of TS specialists

Participation in research or mental health:

Carrying out own research, cooperation in research, involvement in creating guidelines for health care professionals

Person to contact:
Brazil

Brazil

Astoc St

Area covered:
São Paulo
Support services:

Website, phone helpline, e-mail service, private social media groups, live chat, school visits, support group meetings

Participation in research or mental health:

Funding research, cooperation in research, organising lectures/symposia, support as part of the treatment

Person to contact:
Canada

Canada

Tourette Canada

Area covered:
Whole country
Support services:

A website, a general phone line, email service, online forums, private social media groups (WhatsApp/Facebook groups), newsletter/magazine,brochures/flyers/books, school visits and employers, support group meetings,activities/weekends/meet-up's, providing training for professionals, sales of products (t-shirts, pens, badges), an overview of TS specialists in the country

Participation in research or mental health:

Have done so in the past

Person to contact:
China

China

Tic Disorders and Tourette Syndrome Association of China 中国抽动障碍协作组

Area covered:
Whole country
Support services:

Website, e-mail service, brochures/flyers/books, school visits, visits to employers, support group meetings, providing training for professionals, overview of TS specialists

Participation in research or mental health:

Carrying out and publishing own research, cooperation in research, organising lectures/symposia, involvement in creating guidelines for health care professionals

Person to contact:
Czech Republic

Czech Republic

ATOS

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, online forums, private socialmedia groups, brochures/flyers/books, school visits, support group meetings, providing training for professionals, overview of TS specialists

Participation in research or mental health:

Cooperation in research, organising lectures/symposia, support as part of the treatment

Person to contact:
Finland

Finland

Suomen Tourette- ja OCD-yhdistys ry

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, private social media groups,newsletter/magazine, brochures/flyers/books, school visits, support group meetings, activities/weekends/meet-ups, summer camps for families

Participation in research or mental health:

Cooperation in research, evaluating research, organising lectures/symposia

Person to contact:
France

France

Association Française du Syndrome de Gilles de la Tourette (AFSGT)

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, private social media groups, newsletter/magazine, brochures/flyers/books, school visits, visits to employers, support group meetings, activities/weekends/meet-ups, overview of TS specialists

Participation in research or mental health:

Funding for research, cooperation in research

Person to contact:
Germany

Germany

InteressenVerband Tic & Tourette Syndrom e. V., kurz IVTS e. V.

Area covered:
Whole country
Support services:

A website, email service, newsletter/magazine, school visits, support group meetings, activities/weekends/meet-up's, private social media groups(Whatsapp/Facebook groups), brochures/flyers/books

Participation in research or mental health:

Person to contact:
Germany

Germany

Tourette-Gesellschaft Deutschland e.V.

Area covered:
Whole country
Support services:

A website, email service, newsletter/magazine, school visits, support group meetings, activities/weekends/meet-up's, private social media groups(Whatsapp/Facebook groups), brochures/flyers/books, an overview of Tourette's specialists

Participation in research or mental health:

Offer funding for research, co-operate with researchers e.g. find or advertise for participants, organise lectures/symposia/events for professionals, support as part of the treatment

Person to contact:
Hungary

Hungary

Magyar Tourette-szindróma Egyesület

Area covered:
Whole country
Support services:

Website, e-mail service, YouTube channel, private social media groups, brochures/flyers/books, school visits, support group meetings, activities/weekends/meet-ups

Participation in research or mental health:

Person to contact:
Iceland

Iceland

Tourette-samtökin á Íslandi

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service,private social media groups, brochures/flyers/books, school visits, visits to employers, support group meetings, activities/weekends/meet-up's, overview of TS specialists

Participation in research or mental health:

Person to contact:
Italy

Italy

AIST Onlus Associazione Italiana Sindrome di Tourette

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, YouTube channel, private social media groups, newsletter/magazine, brochures/flyers/books, school visits, visits to employers, support group meetings, activities/weekends/meet-up's, providing training for professionals, overview of TS specialists

Participation in research or mental health:

Organising lectures/symposia, involvement in creating guidelines for health care professionals

Person to contact:
Italy

Italy

Tourette Roma Onlus

Area covered:
Centre of Italy
Support services:

Website, e-mail service, YouTube channel, private social media groups, newsletter/magazine, brochures/flyers/books, school visits, support group meetings, legal services.

Facebook, YouTube, Instagram

Participation in research or mental health:

Organising lectures/symposia

Person to contact:
Japan

Japan

Tourette Association Japan

Area covered:
Whole country
Support services:
Participation in research or mental health:

Person to contact:
Teruyo Asai
New Zealand

New Zealand

Tourette’s Association New Zealand

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, online forums, YouTube channel, private social media groups, newsletter/magazine, brochures/flyers/books, support group meetings, activities/weekends/meet-up's, overview of TS specialists

Participation in research or mental health:

Cooperation in research, involvement in creating guidelines for health care professionals

Person to contact:
Norway

Norway

Norsk Tourette Forening

Area covered:
Whole country
Support services:

Website, phone helpline (0047 413 29 776) e-mail service, online forums, YouTube channel, private social media groups, newsletter/magazine, brochures/flyers/books, support group meetings, activities/weekends/meet-up's, overview of TS specialists

Participation in research or mental health:

Cooperation in research, organise lectures/symposia/events for professionals

Person to contact:
Poland

Poland

Polskie Stowarzyszenie Syndrom Tourette's

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, online forums, private social media groups, newsletter/magazine, brochures/flyers/books, support group meetings, activities/weekends/meet-up's, overview of TS, training for professionals,overview of TS specialists

Participation in research or mental health:

Cooperation in research, support as part of treatment

Person to contact:
Portugal

Portugal

Associação Portuguesa de Síndrome de Tourette

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, magazine, brochures/flyers, support group meetings, activities/weekends/meet-up's, overview of TS, training for professionals, overview of TS specialists

Participation in research or mental health:

Cooperation in research, organising lectures/symposia

Person to contact:
Spain

Spain

Tourette Spain

Area covered:
Whole country
Support services:

In Spain there are multiple support organisations; the Spanish associations are at the moment (in 2019) working all together in creating a National Federation. There are in fact 7 different regional associations.:

-Asociación del Principado de Asturias de Síndrome de Tourette y Trastornos Asociados-URL, Email

-Asociación AMATOU-Twitter

-AMPASTTA-URL

-Associación Tourette Catalunya, URL

-ACOVASTTA (Asociación Comunidad Valenciana de Síndrome de Tourette y Trastornos Asociados), URL

-Astta (Andalucia), URL

-Tourette Euskadi (PaisVasco), URL

Participation in research or mental health:

Person to contact:
Sweden

Sweden

Riksförbundet Attention

Area covered:
Whole country
Support services:

Sweden, the organization also represents ADHD and ASD.

Website, magazine, brochures/flyers, support group meetings, activities/weekends/meet-up's, overview of Tourette's, training for professionals, overview of TS specialists

Participation in research or mental health:

Carrying out own research, involvement in public policy

Person to contact:
Taiwan

Taiwan

Taiwan Tourette Family association (台灣妥瑞症協會)

Area covered:
Whole country
Support services:

Website, online forums, newsletter/magazine, school visits, visits to employers, support group meetings, activities/weekends/meet-up's, training for professionals, brochures/flyers/books, an overview of Tourette's specialist sand unicycle training and campaign

Participation in research or mental health:

Support as part of the treatment, cooperation in research, carry out our own research, co-operate with researchers e.g. find or advertise for participants, organise lectures/symposia/events for professionals

Person to contact:
The Netherlands

The Netherlands

Stichting Gilles de la Tourette

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, YouTube channel, private social media groups, newsletter/magazine, brochures/flyers/books, support group meetings, activities/weekends/meet-ups, overview of TS specialists

Participation in research or mental health:

Carrying out own research, cooperation in research

Person to contact:
Turkey

Turkey

Türkiye Tik ve Tourette Sendromu Gönüllüleri -TTSG

Area covered:
Whole country
Support services:

Website, magazine, brochures/flyers, support group meetings, activities/weekends/meet-up's, overview of Tourette's, training for professionals, overview of TS specialists

Participation in research or mental health:

Cooperation in research

Person to contact:
USA

USA

NJ Center for Tourette Syndrome and Associated Disorders

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, YouTube channel, private social media groups (Whatsapp/Facebook groups), newsletter/magazine, brochures/flyers/books, school visits, activities/weekends/meet-up's, training for professionals, overview of TS specialists

Participation in research or mental health:

Cooperation in research, organising lectures/symposia/events for professionals, involvement in public policy

Person to contact:
USA

USA

Tourette Association of America (TAA)

Area covered:
Whole country
Support services:

Website, phone helpline, e-mail service, online forums, YouTube channel, private social media groups (Whatsapp/Facebook groups), newsletter/magazine, brochures/flyers/books, school visits, visits to employers, support group meetings, training for professionals, overview of TS specialists

Participation in research or mental health:

Funding for research, cooperation in research, evaluation of research, organising lectures/symposia/events for professionals, involvement in public policy

Person to contact:
United Kingdom

United Kingdom

Tourettes Action

Area covered:
England, Wales and Northern Ireland
Support services:

Website, phone helpline, e-mail service, Live Chat on website, YouTube channel, private social media groups, newsletter/magazine, brochures/flyers/books, school visits, visits to employers, support group meetings, activities/weekends/meet-up's, providing training for professionals, overview of TS specialists

Participation in research or mental health:

Cooperation in research, organising lectures/symposia

Person to contact:
United Kingdom

United Kingdom

Tourettes-Syndrome inclusion in the community (T.I.C)

Area covered:
Yorkshire
Support services:

Website, phone helpline, e-mail service, online forums, YouTube channel, private social media groups, newsletter/magazine, brochures/flyers/books, school visits, visits to employers

Participation in research or mental health:

Cooperation in research, organising lectures/symposia

Person to contact:
United Kingdom-Northern Ireland

United Kingdom-Northern Ireland

Tourettes Alliance

Area covered:
Northern Ireland
Support services:

Website, e-mail service, online forums, private social media groups, newsletter/magazine, brochures/flyers/books, school visits, visits to employers, support group meetings, activities/weekends/meet-up's

Participation in research or mental health:

Cooperation in research

Person to contact:
United Kingdom-Scotland

United Kingdom-Scotland

Tourettes Scotland

Area covered:
Scotland
Support services:

Website, e-mail service, online forums, private social media groups,newsletter/magazine, brochures/flyers/books, school visits, visits to employers, support group meetings, activities/weekends/meet-up's, providing training for professionals, overview of TS specialists

Participation in research or mental health:

Cooperation in research

Person to contact: