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...the "teaser"

Copenhagen, Denmark

11th European Conference on Tourette Syndrome & Tic Disorders

Thank you Danes and...farewell Copenhagen!

After many months of tireless preparations, we finally made it to beautiful Copenhagen and we were thrilled to meet you all again.

Cheers to our wonderful society, RDV in Hannover!

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A warm welcome...

Here, invited guitarist Michael Seubert trying to keep-up with Kirsten's superior technique at the opening ceremony!

The unstoppable Mary Robertson greets ESSTS from mid-Atlantic!

It's official, ESSTS' first Virtual Meeting was successfully launched on 22 April 2021.

We called it a "teaser" Meeting, for it was only the beginning and we were thrilled to welcome attendees from all around Europe and North America!

We opted for a hybrid format that combined recently recorded interviews & presentations with live content. The new ESSTS Board had the opportunity to introduce themselves after the September 2020 elections, invited speakers Per Andrén from Sweden and Davide Martino from Canada (despite the cruel time difference and while relying on snowstorm-compromised signal!) joined us as well for a live Q & A session, moderated by Cara Verdellen and our Vice Chair Nanette Mol Debes.

A heartfelt thank you to James Leckman who attended our meeting and accepted our invitation to appear live ...impromptu and take questions.

Feel free to get in touch if you need fore information.

Programme

  • Welcome online! Introduction by ESSTS Chair, Kirsten Müller-Vahl and presentation of the new Board
  • Interview with James Leckman (30 min)
  • Update on immunology in Tourette Syndrome/tics, by Davide Martino (20 min)
  • Update on Behavioural Therapy in Tourette Syndrome by Per Andrén (20 min)
  • Best papers of 2019 by Kevin Black  (40 min)
  • Live Q&A session with the Davide Martino (moderator: Nanette Mol Debes) & Per Andrén (moderator: Cara Verdellen)

Invited speakers

James Leckman
James Leckman
more details / CV
Davide Martino
Davide Martino
more details / CV

Behavioural therapy goodie

BT updates, a summary of treatment guidelines and new studies on BT for Tourette Syndrome & chronic tic disorders

Clinical psychologist and PhD student at Karolinska Institutet Per Andrén, has kindly made available to our attendees and now to all interested parties the slides of his presentation. Feel free to download!

WATCH THE RECORDING

Did you miss it? Do you miss it? Off we go! 😎

Congratulations!
Jana and Natalia, you are coming to Lausanne next year!

Recordings

If you were unable to attend, or would simply like to ... 📺 binge-watch these great presentations again..
The majority of the session recordings are now available  and will remain online for at least 3 months after the completion of the Conference.

Welcome message by the ESSTS Board

Welcome to the 13th European Conference on Tourette Syndrome & Tic Disorders!

Available material:
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Plenary session on behavioural interventions for tics

Programme

Haas Martina

Presentation of results of a randomized observer blind clinical trial to demonstrate the efficacy and safety of internet-delivered behavioural treatment for adults with tic disorders (ONLINE-TICS)

Charlotte Hall, Chris Hollis

Therapist-Supported Online Remote Behavioural Intervention for Tics (ORBIT) in Children and Adolescents: A Single-Blind Randomised Controlled Trial

Camilla Babbage

Development of a Self-help Digital Intervention for Young People with Tourette Syndrome

Sophie Allen

Applying an established Exposure Response Prevention protocol for Young People with Tourette’s syndrome in an intensive, group format: a UK feasibility study.

Available material:
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Plenary session on functional, “Tourette-like” behaviours exacerbated by COVID-19 pandemic, Part I

Programme

Compilation of FTB patients' clips diffused over social networks

Prepared by Natalia Szejko

ESSTS survey results "Evaluating frequency and clinical variability of functional tics and Tourette-like behaviours in Europe and all around the globe"

Presented by Natalia Szejko

Plenary session on functional, “Tourette-like” behaviours exacerbated by COVID-19 pandemic, Part II

Programme

Case reports and discussion about underlying pathophysiology

Tamara Pringsheim & Davide Martino (CANADA)

- Rapid onset of functional tic like behaviours in adults during the COVID-19 pandemic

Seonaid Anderson (BELGIUM) (article)

- Tics on TV - Tourette syndrome and the media: lived experiences

Priya Devi Chakraborty (UK)

- Functional Presentations in a Tic Disorder Clinic

Morvwen Duncan (UK)

- Mixed methods follow-up of children and young people following a diagnosis of functional tics: a prospective study

Tammy Hedderly (UK)

- Atypical tic-like presentations during the COVID19 pandemic

Nanette Mol Debes (DENMARK)

- Functional tics – experiences from Denmark

Peter Nagy (HUNGARY)

- Atypical Tic Cases

Theresa Paulus (GERMANY)

- Pandemic tic-like behaviours following social media consumption

Kirsten R. Müller-Vahl (GERMANY)

- Stop that! It’s not Tourette’s but a new type of masssociogenic illness

Cannabis-based treatment in Tourette-Syndrome

Results of the randomized double-blind placebo-controlled trial to demonstrate the efficacy and safety of nabiximols (Sativex®) in the treatment of adults with chronic tic disorders (CANNA-TICS)

Kirsten R. Müller-Vahl

EMTICS: Results from the large European Multicentre Tics in Children Study

Available material:
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Best papers on tics and TS 2020

Kevin Black

A special thanks to Kevin for his phenomenal work and contribution!

Available material:
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Oral presentations of selected abstracts, Session I

Programme

Essing Jana (🏆 Best oral presentation)

- Premonitory urges reconsidered: urge location corresponds to tic location in patients with primary tic disorders

Brandt Valerie

- The relationship between premonitory urges and tics, comorbidities, quality of life, and treatment

Schubert Lina

- Inter-individual differences in urge-tic associations in Tourette syndrome

Houlgreave Mairi

- Detecting the functional anatomy of the urge-to-blink

Friedrich Julia

- Somatosensory perception-action binding in Tourette syndrome

Morand-Beaulieu Simon

-Brain mechanisms of cognitive control in youth with Tourette syndrome and attention deficit hyperactivity disorder: an EEG study

Loewenstern Yocheved

-Objective quantification of tic expression in Tourette syndrome patients

Oral presentations of selected abstracts, Session II

Programme

Szejko Natalia (🏆 Best ePoster)

- There is nothing Tourettic about the New York City subways” - representation of tics and Tourette syndrome in literature, cinema, and theatre

Møller Agerbek Stina

- Sex Differences in Tourette Syndrome

Taylor Evangeline

- Pain and Pain Management in Tics and Tourette Syndrome

Keenan Lisa

- Tics and sleep: Qualitative insights from parents of children with Tourette syndrome

Beljaars Diana, Bervoets Jo

- An innovative person-centred research approach for Tourette’s

Szejko Natalia

-Self-injurious behaviour in patients with chronic tic disorders – new insights and preliminary validation of the self-injurious behaviour scale (SIBS)

Behavioural Therapy workshop for beginner participants

An introduction to behavioural therapy for therapists interested in treating patients with tic disorders. The workshop includes a brief introduction to tic disorders and a step-by-stepin struction to the currently recommended evidence-based behavioural treatments: habit reversal training (HRT) and exposure and response prevention (ERP). Presenters are Dr. Ewgeni Jakubovski from Hannover Medical School, Germany, and PhD candidate Per Andrén from Karolinska Institutet, Sweden.

Programme

- Opening message by the board

- Summary of the 2021 ESSTS guidelines for psychological interventions (Ewgeni Jakubovski & Per Andrén)

- Psychoeducation Ewgeni Jakubovski

- Habit reversal training (HRT) / Comprehensive behavioural intervention for tics (CBIT) Ewgeni Jakubovski

- Exposure and response prevention (ERP) Per Andrén

Behavioural Therapy workshop for advanced participants

Due to the sensitive nature of the clinical material presented in this workshop, the recording of the session will not be made available online.

Do not hesitate to get directly in touch with the trainers to request more information.

(Alphabetical order)

Tara Murphy (UK), Charlotte Sanderson (UK), Zsanett Tárnok (Hungary), Jolande van de Griendt and Cara Verdellen (The Netherlands)

Programme

- Opening by the board & in memoriam of Kieron O’Connor

- Comorbidities/ complex cases:

• Introduction – Charlotte Sanderson

• ADHD – Zsanett Tárnok

• OCD – Jolande van de Griendt

• ASD – Charlotte Sanderson & Tara Murphy

- Functional Tics:

• Diagnostics – Cara Verdellen

• Group Work - Tara Murphy

• Treatment by hypnosis - Cara Verdellen

• Treatment by catalepsy - Jolande van de Griendt

Tics and Tourette Across the Globe (TTAG)

Patient associations session

Tics and Tourette Across the Globe (TTAG) is an umbrella association representing Tic and Tourette Syndrome advocacy groups across the globe, thus creating a united voice for those affected by this neurodevelopmental disorder.

Advocates, clinicians and scientists across the world collaborate to benefit those affected by Tourette Syndrome or tic disorders.

Get in touch with TTAG:

Email, Facebook, Twitter, Instagram, LinkedIn, YouTube, GoFundMe

ePosters

A loud 📢 thank you to all the authors who shared with us their hard work and exceeded our conservative expectations of abstract submissions this virtual year!

You will find below a comprehensive list of the Conference ePosters (titles in alphabetical order).
Click on each block to access the files along with the supporting material (videos & articles) that some of the authors have provided.

to "T" or not to "T"?

Survey:
Controversy: Pro/con discussion with the audience followed by a poll.
download REPORT

Awards

Best Poster presentation award
Lifetime achievement award
Best e-Poster presentation award
Best oral presentation award
Mary Robertson award
Paula Viefhaus
Best Poster presentation award
Lifetime achievement award
Best e-Poster presentation award
Best oral presentation award
Mary Robertson award
Leanne Hockey
Best Poster presentation award
Lifetime achievement award
Best e-Poster presentation award
Best oral presentation award
Mary Robertson award
Juan Carlos Baldermann
Best Poster presentation award
Lifetime achievement award
Best e-Poster presentation award
Best oral presentation award
Mary Robertson award
Anne Gersdorff Korsgaard

Awards

This year, for the first time, the audience voted directly for the awards.

Best Poster presentation award
Lifetime achievement award
Best e-Poster presentation award
Best oral presentation award
Mary Robertson award
Per ANDREN
Best Poster presentation award
Lifetime achievement award
Best e-Poster presentation award
Best oral presentation award
Mary Robertson award
1st prize: Fotis TSETSOS
2nd prize: Maria HADJI-MICHAEL
3rd prize: Martina HAAS
Best Poster presentation award
Lifetime achievement award
Best e-Poster presentation award
Best oral presentation award
Mary Robertson award
1st prize: Ewgeni JAKUBOVSKI
2nd prize: Laura BELJAARS
3rd prize: Mayaan HALEVI, Yarisa Nicola PIRIS, Chloe TAYLOR
AWARDS

Paula Viefhaus

Mary Robertson Award

Efficacy of a Resource Activation Treatment in Children with Chronic Tic Disorders – A Within-Subject Analysis

Leanne Hockey

Best oral presentation

Attention and inhibition in Tourette’s Syndrome

Juan Carlos Baldermann

Best poster presentation

Stimulation-dependent functional connectivity of effective deep brain stimulation for Tourette Syndrome

Anne Gersdorff Korsgaard

ESSTS Lifetime achievement award
AWARDS

Per ANDREN

Mary Robertson Award

Clinical and cost-effectiveness of Internet-delivered behaviour therapy for children and adolescents with Tourette syndrome: Protocol for a single-blind randomised controlled trial in Sweden

Fotis tsetsos

Best oral presentation
1st prize

Genome-wide association study of Tourette investigates the genetic determinants of Tourette and implicates neuronal and synaptic processes

Fotis TSETSOS-1st prize-Best oral presentation

Maria HADJI-MICHAEl

Best oral presentation
2nd prize

Alexithymia and interoception in children with Tourette syndrome: A clinical audit

Martina HAAS

Best oral presentation
3rd prize

YGTSS: A critical look at the psychometric quality of the gold standard based on EMTICS data

Ewgeni JAKUBOVSKI

Best e-poster presentation
1st prize

ABX-1431, A First-in-Class Endocannabinoid Modulator, Improves Tics in Adult Patients with Tourette Syndrome

Laura BELJAARS

Best e-poster presentation
2nd prize

ESSTS Patient Groups: The whole is greater than the sum of its parts

Mayaan HALEVI

Best e-poster presentation
3rd prize

“Tic Attacks” in Tourette Syndrome

Yarisa Nicola PIRIS

Best e-poster presentation
3rd prize

Sexuality and Tourette Syndrome: The impact of sexual self-esteem on sexual practices. Pilot study.

Chloe TAYLOR

Best e-poster presentation
3rd prize

A case study of a child with complex TS treated with intensive CBIT and close school liaison

On stage / Backstage

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