Dear Tourette Community,
On behalf of the International Parkinson’s Disease and Movement Disorders Society Tic and Tourette Syndrome Study Group, we are requesting you complete this 10-minute survey describing your clinical practices with tic patients. Your input is crucial.
Practice variations continue to be quite wide and that many barriers in different clinical settings might negatively influence the adoption of the American Academy of Neurology and the European Society for the Study of Tourette Syndrome published guidelines.
The objectives of this survey are 1) to identify how clinical practices diverge from the existing AAN and ESSTS guidelines, and 2) to identify categories of barriers leading to these clinical care gaps.
There is a need to assess the degree that these clinical guidelines are being followed, contextualize them within diverse practices, and identify barriers encountered so that strategies can be developed to consistently achieve a standard of care.
We sincerely appreciate your time for this important study,
Jaclyn M. Martindale, Harini Sarva, Davide Martino, Donald L. Gilbert, Christos Ganos, Tamara Pringsheim, Kevin Black, and Irene A. Malaty on behalf of the Movement Disorder Society Tic and Tourette Study Group
This study is approved by the Wake Forest University Health Services Institutional Review Board IRB00091225