Updated from previous meeting:
Registrations and numbers
-Conference registrations: 120
-Social event: 84
-Membership renewals: 50
-TS-school: 20
-IT BT workshop: 11
Quick debrief post-Varese visit
-By @Anna; transport from Malpensa/hotel rooms & conference rooms/catering/morning shuttle from ground level/morning run meeting point/Villa Panza
Waived registrations, accommodations & co
-Katrin Woitecki, Renata Rizzo; updates (by @Anna)
Abstracts/OPs & PPs programme/Travel grants/Clinical cases/MRA/Session chairs
(For real-time info: click on the buttons at the top of the page)
-Finalise (by @Nanette and almost done!) poster round programme
-Oral presentation programme?
-Clinical rounds; habemus final list of cases? @Tammy Check
here-MRA; Has Jeremy made the final selection?
-Assign session moderators
Speed networking-coffee break
Updated from previous meeting:
-Discussion/format/finalise announcement
-@Christelle Share ideas from last autumn?
Tic-Talk survey
Discussion, updates, presenting at the conference; anything to consider/add?
Sponsors; Noema CDA
Updated from previous meeting:
-@Nanette will elaborate
MDS Study group collaborations
Updated from previous meeting:
-Upcoming Zoom 27.05 4pm CEST; anything to discuss now?
Webinars/Podcasts
Updated from previous meeting:
-Natalia has already recorded 2 (on tourettic OCD and sleep). Good to have 4 in total online for the GA?
-Christelle podcast suggestions (extract from her email):
For episode 4
- ✅ Scheduled for 6 May.
Interviewing D Mataix-Cols for the paper "Early-Life and Family Risk Factors for Tic Disorder Persistence into Adulthood » (https://pubmed.ncbi.nlm.nih.gov/37246931/) - Interviewing Lindsay Berg about « Symptom Severity and Health Impacts of Functional Tic-Like Behaviors in Youth (https://pubmed.ncbi.nlm.nih.gov/38603984/): interesting, but about FTLBs and not tics.
- Making an episode about DBS (indications, risks, disparities of access), I thought about asking Yulia. (Suggestion by Kirsten: Juan Carlos Baldermann)
For episode 5
- I would like to interview a teacher and a parent about challenges of having a child with tics in the classroom, and then interview Julian Fletcher about potential solutions. It will take more time to do and Julian is busy this month, so I think it’s good for Episode 5.
ESSTS Conference 2025 location
The short version; both Bergen and Paris are unviable options as it stands.
-Heike has been very active and has collected different cost estimates; unfortunately, non budget-compatible.
-From the Parisian venues contacted, 3 out of 6 replied, all of them out of reach.
-Realistic brainstorming; other alternative?? Cheaper destination*? Virtual conference? :(
*Anna might have a back-up plan(ish) to consider in case of a dead-end.
Updated from previous meeting:
-Athens as a back up; 4 venues have been contacted for estimates
Finances
-Check the budget sheet & sub-sheets (button top of the page).
-Discussion (faster to communicate the current landscape orally than type; Anna says sorry!)
Updated from previous meeting:
-Contacted Billie Eilish's managers, by @Christelle
-Donation campaign?
(Andreas already composed a draft/concept for consideration 😊)
Dear Friends of ESSTS,
Over the past years, ESSTS has grown and advanced in big strides with an ever-increasing number of attendees at our annual conference, and a wide choice of services and resources now offered (podcasts, webinars, the TS School…).
However, sponsorship money is on the decrease, and membership adhesions remain disappointingly low. For this reason, despite all the hard work, the shiny website and newsletters, we continue to struggle financially, barely making it from one year to another. In other words, we need a financial buffer and, if the term is appropriate, some peace of mind to continue working over the next years.
Thus, we would like to make a plea for donations. The donation button has actually existed on the ESSTS website since 2018 but never used.
Maybe, if you have patients or colleagues who might wish to help us, make them aware. Equally, we are always glad to welcome new sponsors. And please do not hesitate to contact us in case of questions.
Thank you for your support!
The ESSTS Board
Logistics to confirm
-Double check and confirm your hotel reservations (button above), and book your flights!